I have finally reached a sort of compromise with the school while we wait for the IEP meeting. My daughter will receive her spelling words and homework packet on Fridays and they will be due Friday. She also receives a list of shorter, kindergarten words. (So they can change the actual words to different ones but can't reduce them without a meeting.......lol).
Anyway I have finally just flat out told them if she can't do it she can't do it end of story. I have begun journaling her daily behaviors, I have made a sticker chart that has been working (although Piper can't read the chart so i am going to develop one made out of pictures for her ), and I have included another chart for amount of time spent on homework spelling words a day that I put right in her communication book.
I had made a communication book with emoticons where the teacher could simply check off Piper's mood as she completed the tasks each day and they said it was too complicated. Which I find amusing because all they do not is check mark whether or not she did the task. Anyway, so it is back to the drawing board on the communication book.
Another set back is Piper's recent unusual behavior which has included whispering to herself daily, especially at night, repeating her name over and over again, chewing on her sleeves (she's always done that but it seemed like it has stopped for a while), and licking EVERYTHING. She was even licking the windows of my dad's new car.
Because she gets her medication at night a little later now I think that might contribute to the behaviors from last night. She came out of the hallway of the boys and girls club going "Piper Piper Piper Piper Piper Piper" she had to touch everything, including glass picture frames that I had to stop her or they would have broken, and it was difficult to not only get her to get her coat, but to get it on her because she kept missing the sleeve and spinning around. Piper has always displayed these behaviors but not as often as this and the medication has kept them within reason. I am beginning to worry that the medication is making her worse (in the sense that if she were to stop taking it she would be WORSE, even though now it helps control her symptoms).
I really want to stop the medication and let it flush out of her system and then really get an idea of what she is really like without it because some of the stuff is getting weird. She even has talked to herself in the third person, but was serious. She had a temper tantrum when she asked for 3 hot dogs and I JOKINGLY told her she could only have a half of hot dog.
I really want to stop the medication before it does more damage and /or at the very least see what her behaviors are without it. The medication doesn't seem to be working as well anyway probably because she is growing and the dosage stays the same.
I wish I knew what to do..................If it weren't for the school i would wean her off the meds just to get an accurate picture of her without them before putting her back on them. She has been on medication since she was 4. (not my choice my parents did that when she lived with them ).
I could really use some advice right now. Is this behavior normal for a 7 year old? Maybe I am just paranoid...She definitely is Dyslexic, has ADHD, and has mood issues, she also went to an OT therapist and they said it seemed clear she does have sensory issues (and this is ON THE MEDS).
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